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PTEN UK & Ireland Patient Group

PTEN UK & Ireland Patient Group

PTENUKI is a patient group which aims to help and support patients, carers, families affected by PTEN

PTEN UK & Ireland Patient Group

3 days ago

PTEN UK & Ireland Patient Group
Looking forward to seeing you all tomorrow for our webinar with Renaissance Legal. We have a few spaces remaining if you are thinking of coming, please grab a space. It’s a great way to come and find out some info so you can make an informed decision for your families future.Tomorrow Stuart Price is partnering with PTEN UK & Ireland Patient Group to present a free 1 hour webinar. Stuart will explain how to safeguard means tested benefits and how you can provide financial security for a disabled or vulnerable person. There is a Q&A at the end. To further info: ow.ly/OR3C50Rsht8 ... See MoreSee Less

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PTEN UK & Ireland Patient Group

5 days ago

PTEN UK & Ireland Patient Group
This may be of interest to some of our community…We'd like to wish Oliver McGowan a happy heavenly birthday today, and take this opportunity to share again about Oliver's Campaign ran by his Mum, Paula McGowan OBE. We'd also like to share our factsheet for parents of a child or young person with a learning disability. It has information on GPlearning disability registers and annual health checks, why they are important and how you can support yourchild or young person to access the services they are entitled to. Find out more about Oliver's Campaign here: www.olivermcgowan.org/Read our factsheet here: contact.org.uk/wp-content/uploads/2021/03/Annual-health-checks-parents.pdf ... See MoreSee Less

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PTEN UK & Ireland Patient Group

1 week ago

PTEN UK & Ireland Patient Group
We hope to see you all at the PTEN Power Hour next Thursday at 10am with Renaissance Legal. This session is all around how to set up a Disability Trust Fund which is extremely important if you have any family member receiving benefits such as DLA or PIP.To book your space at the FREE event click here: www.eventbrite.co.uk/e/planning-for-the-future-with-wills-and-trusts-tickets-883298939907 ... See MoreSee Less

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Support the PTEN Patient group and work we do to help the UK & Ireland to understand and manage the condition.